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In 2004, our cousin Hubert passed away at the age 7 from a cancer , the Neuroblastoma. Following his tragic death, his mother Anne Gouin decided to create the association “Enfance et Cancer: Association Hubert Gouin” to help the research on infantile cancer. The association is supported by a committee of 7 doctors
specialised in infantile cancer, which is led by Dr. Jean Michon, head of the paediatric oncology department at the Marie Curie Institute in Paris. For the past 15 years, the association has been organising sporting and cultural events to launch fundraising campaigns and stimulate the awareness of the lack of fundings in research on child cancer. All donations are distributed towards projects chosen by scientific committee. 

 

We have taken the decision to support a project led by the association, in collaboration with SIOPEN (Société Internationale d’Oncologie Pédiatrique-Europe-Neuroblastome). Thanks to the support of our sponsors, we are aiming to finance 55% of the project, and 12’000 euros.

 This contribution will have a crucial role in the operations of clinical studies in France, thus covering the treatment of patients suffering from neuroblastoma in the in the scope of clinical protocols of the SIOPEN. The association also needs financial support to update and ensure the functioning of neuroblastoma-associated databases, intended to increase the effectiveness of long-term treatments.